What is Haemophilia?
People born with Haemophilia are missing one or more of the essential clotting factors our blood needs to heal a wound or a bump. Contrary to popular belief, this does not mean that people with blood disorders will bleed to death when cut or scratched. In actual fact, the deficiency in clotting factors more frequently results in internal bleeding, usually into the joints or muscles. These bleeding episodes, or "bleeds", may occur spontaneously (apparently without any cause), or as a result of trauma (injury). The bleeding can be stopped by infusion of the appropriate clotting factor by intravenous injection however bleeds can result in pain, swelling and damage to the tissues. Over a period of time that can cause permanent damage (such as arthritis in the joints) and chronic pain. While people with Haemophilia may find their cuts bleed a little longer it is these internal ‘bleeds’ that pose the greatest threat to their health and wellbeing.
How is Wyeth making a difference?
The regular blood transfusions required to manage the condition have traditionally put people with Haemophilia at a high risk of blood-borne viruses and other infections. To limit this risk for Haemophilia patients, Wyeth has developed two genetically engineered clotting factors.
In addition, through our ongoing partnership with the Haemophilia Foundation Australia Wyeth is also committed to providing patients with the education and support they need to manage their condition.
Living with Haemophilia
Thanks to improvements in treatment and developments in modern medicine, the management of Haemophilia has become much more effective. Many people with Haemophilia can now live a normal life with a much improved quality of life. Whilst it is always important to consult your doctor before making any significant changes to your lifestyle, for most people with Haemophilia it is safe to play non contact sports, go to work, and travel. Kyle’s story is just one example of how people with Haemophilia are living fulfilled and rewarding lives.
